CAH Resource Library

Welcome to The MAGIC Foundation Congenital Adrenal Hyperplasia (CAH) Resource Library, including an Expert Interview Series, an educational video series aimed to promate CAH awareness and highlight key treatment and management considerations for HCP's caring for pediatric and adult patients with CAH.

Sponsored by Spruce Biosciences

Spruce Biosciences

About CAH

CAH experts describe the difference between classic and non-classic CAH, the signs and symptoms of excess androgens, TARTs and the impact on male fertility, and the consequences of infertility in women with CAH.

Presented by Mitchell E. Geffner, MD, Children’s Hospital Los Angeles; Richard Auchus, MD, PhD, University of Michigan; Henrik Falhammar, MD, FRACP, PhD, Karolinska University Hospital; Amir H. Hamrahian, MD, Johns Hopkins University

▶   What is CAH?▶   Signs and Symptoms of Excess Androgens▶   Male Fertility Challenges▶   Impact on Female Fertility

CAH Transition of Care

In the interviews experts discuss the various challenges and key considerations when patients with CAH are transitioning from pediatric to adult care.

Presented by Claus Højbjerg Gravholt, MD, PhD, Aarhus University Hospital; Mitchell E. Geffner, MD, Children’s Hospital Los Angeles

▶   Challenges from Pediatric to Adult Care▶   Strategies to Support Transition in Care

A Delicate Balance: CAH Treatment

Experts highlight current and novel therapy options and management considerations for people living with CAH.

Presented by Richard Auchus, MD, PhD, University of Michigan; Kiki Sarafoglou, MD, University of Minnesota Masonic Children's Hospital

▶   Glucocorticoids Role in Controlling Excess Androgens▶   Long-Term Consequence of Glucocorticoid Therapy▶   Challenges with Current Therapies▶   New CAH Therapy Options

CAH Clinical Research Engagement

In the interviews experts discuss available resources for patients engaging in clinical research and how to best approach families and patients about clinical trial enrollment.

Presented by Mitchell E. Geffner, MD, Children’s Hospital Los Angeles; Nicole Reisch-Pawlu, MD, Ludwig Maximilian University of Munich; Mimi S. Kim, MD, MSc, Children’s Hospital Los Angeles

▶   Pediatric Engagement in Clinical Trials▶   Patient Interest in Clinical Research▶   Setting Expectations for Clinical Trial Involvement▶   CAH Camp

Expert Panel

Richard Auchus, MD, PhD

Richard Auchus, MD, PhD
University of Michigan

Henrik Falhammar, MD, FRACP, PhD

Henrik Falhammar, MD, FRACP, PhD
Karolinska University Hospital

Mitchell E. Geffner, MD

Mitchell E. Geffner, MD
Children’s Hospital Los Angeles

Amir H. Hamrahian, MD

Amir H. Hamrahian, MD
Johns Hopkins University

Claus Højbjerg Gravholt, MD, PhD

Claus Højbjerg Gravholt, MD, PhD
Aarhus University Hospital

Mimi S. Kim, MD, MSc

Mimi S. Kim, MD, MSc
Children’s Hospital Los Angeles

Nicole Reisch-Pawlu, MD

Nicole Reisch-Pawlu, MD
Ludwig Maximilian University of Munich

Kiki Sarafoglou, MD

Kiki Sarafoglou, MD
University of Minnesota Masonic Children's Hospital

 

 

The Independent Charities Seal of Excellence is awarded to Charities of America that have, upon rigorous independent review, been able to certify, on an annual basis that they meet the highest standards of public accountability, program effectiveness, and cost effectiveness.

These standards include those required by the US Government for inclusion in the Combined Federal Campaign, probably the most exclusive fund drive in the world.

Of the 1,000,000 charities operating in the United States today, it is estimated that fewer than 50,000, or 5 percent, meet or exceed these standards, and, of those, fewer than 2,000 have been awarded this Seal. MAGIC's CFC #10388.

Joining MAGIC Foundation has incredible member benefits including a quarterly newsletter, discounts on events, and best of all you are supporting the world's leading advocacy and information group help thousands of families.