Each MAGIC Foundation division has a consultant who acts as a liaison and support person. Typically Division Consultants are parents of an affected child, so they understand the challenges of their specific disorders from first-hand experience.
Achondroplasia -
Adult Growth Hormone Deficiency - Kelly Speiran
Congenital Adrenal Hyperplasia - Lisa Hughes
Cushing's Disease -
Growth Hormone Deficiency in Children - Teresa Tucker
Hypophosphatasia - Beth & Kevin Glowacz
McCune Albright Syndrome/Fibrous Dysplasia - Johnna Gulluscio
Panhypopituitarism/Tumor - Erin Beamon
Precocious Puberty - Pallavi Kabadi
Russell-Silver Syndrome - Dayna Carney
Septo Optic Dysplasia/Optic Nerve Hypoplasia - Rachel Nalwa
Small for Gestational Age - Megan Donnell
Network Coordinators:
Insulin Like Growth Factor Deficiency - Jamie Sorensen
Kenny Caffey Syndrome - Kirsten McDonald
Noonan Syndrome - Amy Joob
Thyroid Conditions - Blythe Clifford
Turner Syndrome - Gretta DeSantis
Additional Volunteers and Specialists:
Arnold-Chiari Malformation - Michelle Scognamio
Chronic Renal Insufficiency - Lola Fortier
Disorders of Sexual Development - Clair S.
Down Syndrome as it relates to growth problems - Linda Blevins
Graves Disease - Sharon McHugh
Jeunes Syndrome - Erica Rieger
School Accomodations - Jodi Zwain
School Accomodations - Yvette Getch
Schwartz - Jampel Syndrome - Rani Elway
Sensory Integration Disorder/Failure to Thrive - Beth Hultquist
Sheehan Syndrome - Sandi Bradshaw
As parents of affected children we all benefit from the great work of all these tremendous people. Feel free to contact them for questions or just to tell them thanks! They can be reached via the Contact Us link. Simply put their name in the subject line and we will make sure they get it!
As a parent of an affected child, or affected adult, if you would like to volunteer your time to answer phone calls regarding a rare disorder or other special talent, please call our office and ask to speak with Dianne. She can be reached at 630-836-8200. Thanks!