Each MAGIC Foundation division has a consultant who acts as a liaison and support person. Typically Division Consultants are parents of an affected child, so they understand the challenges of their specific disorders from first-hand experience.
Erica Metaxas - Adult Growth Hormone Deficiency
Jackie Edgar - Cushing's Disease
Tamara Gordon - McCune Albright Syndrome/Fibrous Dysplasia
Martha Michals - Septo Optic Dysplasia/Optic Nerve Hypoplasia
Alisa Baroukh - Precocious Puberty
Lisa Hughes - Congenital Adrenal Hyperplasia
Dayna Carney - Russell-Silver Syndrome
Megan Donnell - Small for Gestational Age
Teresa Tucker - Growth Hormone Deficiency in Children
Erin Beamon - Panhypopituitarism/Tumor
Tracey Porreca - Hypophosphatasia
Network Coordinators:
Jamie Sorensen - Insulin Like Growth Factor Deficiency
Gretta DeSantis - Turner Syndrome
Blythe Clifford - Thyroid Conditions
Kirsten McDonald - Kenny Caffey Syndrome
Additional Volunteers and Specialists:
Lola Fortier - Chronic Renal Insufficiency
Linda Blevins - Down Syndrome as it relates to growth problems
Clair S. - Disorders of Sexual Development
Sharon McHugh - Graves Disease
Erica Rieger - Jeunes Syndrome
Sandi Bradshaw - Sheehan Syndrome
Rani Elway - Schwartz - Jampel Syndrome
Beth Hultquist - Sensory Integration Disorder/Failure to Thrive
Michelle Scognamio - Arnold-Chiari Malformation
Jodi Zwain - School Accomodations
Yvette Getch - School Accomodations
As parents of affected children we all benefit from the great work of all these tremendous people. Feel free to contact them for questions or just to tell them thanks! They can be reached via the Contact Us link. Simply put their name in the subject line and we will make sure they get it!
As a parent of an affected child, or affected adult, if you would like to volunteer your time to answer phone calls regarding a rare disorder or other special talent, please call our office and ask to speak with Dianne. She can be reached at 630-836-8200. Thanks!