RSS Research & Education Fund

RSS Research & Education Fund

In August 2012, The MAGIC Foundation announced the establishment of The RSS/SGA Research and Education Fund, dedicated to making real differences in the lives of those with Russell-Silver Syndrome and/or born small-for-gestational-age.  The Fund was launched in the fall of 2012 with funds raised in honor of Madeleine D. Harbison, M.D., the woman who, more than any other person, has been instrumental in the advancement of RSS/SGA research and education here in the United States.

Based on feedback from MAGIC members, the Fund set out with an initial lengthy list of proposed goals for the two-year period covering August 2012-July 2014.  We encourage you to read through the list of proposed goals/projects and let us know which ones you think are most important.

Change for the Russell-Silver Syndrome/Small-for-Gestational-Age community has always occurred when we have worked together to make things happen … our RSS/SGA Guidebook was published, the MAGIC convention expanded, we’ve worked to produce new research, and we’ve fought for our children’s rights in our state and federal legislature, just to name a few accomplishments.

Imagine new research investigating topics such as puberty issues, fertility/reproduction, scoliosis, learning abilities, ADD/ADHD, etc. … imagine new educational tools for schools, parents, coaches … imagine the continued availability of the Guidebook to new families.

We have to continue to work together to ensure that all RSS/SGA individuals have access to the most up-to-date medical information and treatment options available, regardless of their age, where they live or the size of their household income. This is all of our responsibility – change will only occur if we work together.

We set a budget of just $100,000 to cover the first two years of the Fund’s projects; we raised almost $67,000 in the first year and are very proud of our families.  We are a lean, mean fighting machine – we do not need millions of dollars to accomplish a lot.  But we have to keep fundraising.  Can you help?

You can help in many ways:

  • Click HERE to make a tax-deductible donation now.
  • Check with your employer to find out if they will match your donation.
  • To find out about several easy fundraisers that you can do to help the R&E Fund, email jennifer.salem@magicfoundation.org.
  • Share our good news with your child’s grandparents, and/or close family and friends.  All donations are tax-deductible and we can use all the help we can get!

Thank you so very much.  If you have any questions about the Research & Education Fund or its goals and/or projects, email jennifer.salem@magicfoundation.org.
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