Additional Resources
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Treatment of the Ill RSS/SGA Child: Guidelines for First Responders, Emergency Services, and Inpatient Care Teams
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RSS Consensus Statement
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RSS/SGA Growth Charts
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Dental Clinical Article:
Occlusal Characteristics of Individuals with GHD, ISS and RSS
Premium Resources
Transition to Adulthood Brochures
The "Transitioning to Adulthood" brochures provide easy-to-read information for the patient (blue brochure) and their new endo (white brochure), who will be managing their ongoing care in adulthood. The brochures describe the different health issues that the patient may be at increased risk for, as well as the recommended health care monitoring and/or treatment guidelines. These brochures can be obtained as a set (one for the patient and family; the other for the physician) for a donation of $8, which includes shipping in the United States. Once your donation is made, you will receive the file as a downloadable PDF, a copy sent to your email, and a printed brochure mailed to you.. If you live outside the U.S., you will only receive the PDF file.
RSS/SGA Guidebook
RSS/SGA - A Comprehensive Guide: Understanding Aspects of Children Diagnosed with Russell-Silver Syndrome or Born Small-for-Gestational-Age
Written by Jennifer Salem along with the following physicians and medical professionals: C. Baranoski, P. Czernichow, C. Dumont, J. Gardner, M. Geffner, Y. Getch, M. Harbison, I. Netchine, R. Stanhope, and M. Toumba. Chico, CA:Quadco Printing Co. Inc., 2009 (ISBN No. 978-615-23362-8), pgs. 1-330.
The 330-page RSS/SGA Guidebook is available only through The MAGIC Foundation and includes fifteen chapters ranging from “Physical Characteristics” to “Improving Your Child’s Weight” to “Moving into Adulthood.” Each chapter summarizes and cites the existing published medical research and includes additional clinical experience by the authors. The guidebook also includes many different personal stories and photos of children and families throughout the book, and at the end, there is a lengthy section covering “Parent-to-Parent-Tips” on just about any kind of question you can imagine that is not already covered in the Guidebook.
It is important to note that this Guidebook is appropriate not only for children diagnosed with Russell-Silver syndrome, but any child born SGA who also has postnatal growth failure. Parents have described reading the Guidebook so many times that the pages are worn, they have yellow post-it notes on various pages, etc.
A 2025 2nd edition of the Guidebook will be available for purchase (hard copies or ebook) by late 2025 or early 2026. When we have more information, we will let you know. At this time, we are able to offer a color PDF copy of the 330-page guidebook with a minimum donation of $20. The PDF will be emailed to you within a week of your donation.
Medical professionals can request a FREE copy by emailing pam@magicfoundation.org
