Idiopathic short stature (ISS) can have a negative impact on children’s physical, emotional, and social wellbeing. The Redefining ISS: Improving Confidence and Clarity report explores the lived experiences of children with ISS and their families, highlighting these challenges.

The report sets out clear, practical recommendations created together with representatives from the patient community and healthcare professionals to initiate change and improve the lives of those from this community. These recommendations are aimed at a wide range of people who can make the change happen, including patient organizations, schools, healthcare professionals and systems, insurers, and policymakers.

The outputs of Redefining ISS: Improving Confidence and Clarity represent the views of ICOSEP and supporting patient groups. This paper is non-promotional and not specific to any treatment or therapy. The Redefining ISS: Improving Confidence and Clarity project was created in collaboration with and funded by Novo Nordisk Health Care AG