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Congenital Adrenal Hyperplasia
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Due to confidentiality- we have closed this board for new posting. Instead we offer a searchable (easier to use) Yahoo Listserv for posting etc. Many parents are listed here but you need to have a Yahoo Id and apply for membership to the Listserv. (We do this to protect families and keep out "junk"). To find our CAH Yahoo Listserv- cut this out and paste it into your browser or go to our CAH page and click on the direct Yahoo link: http://health.groups.yahoo.com/group/MAGIC-CAH/?yguid=233301092
Feel free to read the past posts so that you have a small idea of how the larger Listserv can help you.
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On Jul 01 2008, Jamie Wrote:
To Kelly in Illinois~
Please join our new larger group at:
Yahoo Listserv- http://health.groups.yahoo.com/group/MAGIC-CAH/?yguid=233301092
On Jun 28 2008, Kelly/Illinois Wrote:
Hi - I'm a mom of 3 kids (2 non-affected)with the third diagnosed with Salt Wasting CAH when he was 11 days old.
He is now 7 months old and on three time daily doses of Hydrocortisone, Fludocortisone and Sodium Chloride tablets. All pills are disolved in nursery water and administer through a medicine dropper.
The Sodium Chloride tablets are always out of stock with our local pharmacy and even though we call the refill in early - we are literally down to the last dose before the pharmacy is able to fill the RX.
Our Endo (who we love) has suggested transitioning to table salt now that our son is eating baby food. We'll be able to mix the sodium directly into his food. Does anyone know what the conversion would be for 1 GM tablet versus table salt?
Any suggestions would be greatly appreciated!
On Jun 20 2008, Sharla Adrian Wrote:
Helpful Hint:
Several insurance companies have an agreement with Mt. Sinai. We conducted our genetic testing for FREE. BILLING INFORMATION
There is no charge for AME research testing. We accept institutional billing or payment by check or credit card. The following insurance plans are accepted: Aetna PPO/POS, Aetna HMO, Child Health Plus, Cigna, Empire BC/BC PPO, Empire BC/BC HMO, Fidelis, NY Medicaid, Oxford, Oxford Liberty, PHS, United Healthcare.
Thought this would help another family. It identified our son as 11Beta and found my husband and I to be carriers, which we suspected.
On Mar 17 2008, Jami - CAH Moderator Wrote:
Happy St. Patrick's Day All!
Well, we had Brandon's 6 month check up and he has officially quit growing; although he might still grow 1/4 to 1/2 inch over the next few years. His original final height was predicted at 4'7" without intervention and he is now 5'7 1/4"...WOW!!! We were hoping for at least a final height of 5' and he surpassed even the doctor's cautious predictions.
Now, it looks like he'll be starting Prednisone in April...has anyone else here made the switch from Cortef to Prednisone? If so, how did it go?
Brandon is very, very nervous (as we are) - he's scared about the possible appetite increase we've read about. Brandon already struggles with his weight...he was diagnosed with hyper-insulinism in Sept. 2006 and started Metformin that same month. Within 3 months, he had lost 50 pounds...not a typical result but boy, was he happy!
Now that he's going to be starting Prednisone, he's afraid that he'll begin gaining the weight back that he's working so hard to keep off.
As well, his levels seem to be wildly fluctuating and his doc seems to think it's because he's using his Cortef at unpredictable rates and that the Prednisone will even his levels out...
Any information you are willing to share with my 15, almost 16, year old son would be greatly appreciated!
Thank you, in advance! Have a fabulous March!!!
On Feb 25 2008, Amy/Virginia Wrote:
Response for Carmie from West Virginia
My son is 4 months old and he has the classical form of CAH. We have an excellent endocrinologist that we see in Charlottesville Virginia at the University of Virginia. His name is Dr. Clarke. He has been wonderful for us. I hope this helps you.
On Feb 24 2008, Allison Wrote:
I am 32 year old female who has Cah, I was diagnosised at the age of 10, after symptons of early puberty started at like 8. I have always been on hydrocortsine and reached a height of 5"5, I come from a tall family. I guess in regards to getting a young person ready to face the world. You start teaching them respondability from a young age, during my high school years I went to the endroconalogist by myself and had the respondability to call to refill my meds. I moved to the Twin Cities when I was 22 from the Hometown where I grew up which is about 3 hours away. I found a doctor on my own. I also have mild mental retardation from a another genetic condition. I do where a "Medical Alert" necklace
On Feb 21 2008, Carmie from WV Wrote:
My 7 year old grandson has CAH and a bone age of 13. Treatment has seemed to stop working. We need a doctor referral "The man" for anywhere on the East Coast. Exclude Richmond, as they have tried that venue. Please help.
On Nov 08 2007, Pat CAH coordinator Wrote:
Cathy Kusch,
I was wondering how you handle a CAH child going away to college. It will not be until next year, but I need to be prepared now. How do I find out if he will get treatment when he needs it.
On Oct 11 2007, Laura C. CAH Coordinator Wrote:
Hi Sharla,
It is my understanding that CAH is a genetic disorder, period. I went through genetic testing with my second husband because I too had concern about having another baby and I was already considered a high-risk pregnancy from toxemia. There is a simple blood test (ACTH Stimulation...I think) but it only has a 70% accuracy rate, better then none. I saw a genetic counselor and had a really hard time locating one who could help us and we decided that the blood test was good enough for us.
I do have some paper work I could get to you about the genetic mutation. (Contact Magic for my phone number or direct e-mail address.) I have never found holistic treatments for CAH, and I looked a lot, nor would I risk the consequence of failure, as you know they can be drastic and life threatening. I live in Illinois and have been very fortunate with my doctors. I have traveled to Boston with my daughter looking for more information about surgeries and treatment but ended up finding that my doctors were perfect for me.
On an emotional level, once you get past the shock of your child's diagnosis and get used to medication as a part of your life, CAH becomes a very manageable disease. It takes time; my kids are 9 years apart. When I found out about my daughters CAH I went to have my tubes tied but my doctor refused, I am now very thankful for that.
We have blood tests every 4 months and see the doctor. Hospitals are starting to be more informed and even nursing schools are teaching about CAH. There was a time when my pediatrician was also researching CAH. You will become an expert. I would look for a good endocrinologist that you like and is knowledgeable. Once you get comfortable with the medications and your doctors CAH becomes part of your life similar to a child who is faced with any other condition like diabetes. I have found CAH to be very manageable and my daughter would agree, she is almost 15. She has developed normally but has short stature 4'11'. There are some treatments to help with that but I have never done them, she is only 2-3 inches from her target height. She is a great kid and lives the normal life a teenager, anything else was never an option. Please contact Magic if you want to talk or e-mail or I will keep checking the message board and respond as best as I can. Also, come to the convention if you can. MAGIC really saved my sanity the first few years. Laura
On Oct 09 2007, Cathy Division Consultant Wrote:
Hello Everyone!
I hope the start of the school year has gone smoothly for all of you. Fall is here and I must admit that I am glad for the change of season. School for Dan (my CAH son and freshman in college) so far has been good, and Sarah (my college graduate) has a job doing what she loves, teaching! YAHOO!
I just wanted to let you know that Convention 2008 plans are already underway. We hope to once again have a great program for you. We will be bringing back the big hit "girls only" group, emergency injections, and networking. For those of you that have attended you know what a big undertaking it is and we do try to have topics that appeal to everyone. I guess at this time I would like to ask you your thoughts on what topics you would like to hear discussed at the conference.
I look forward to hearing about your thoughts and suggenstions. Thank you!
On Oct 07 2007, Sharla Wrote:
I am new to CAH and this message board. I am hoping for some advice and help from others. Our son wasn't diagnosed until he was 1 year old during which time he also had numerous crisis' that went undiagnosed until he started showing pubertal changes. His newborn screening did not indicate he had CAH. At first I was outraged that he needed to have physical signs of pubic hair before someone would take him seriously. He was constantly ill, lethargic and looked horrible….after a few pediatricians, too many antibiotics from mis-diagnosing him, unnecessary labs, one pediatrician finally sent us to the proper channels. We are dealing well with this at the moment. Initially I was in denial. I did not want my child on medication for life! No doctor has mentioned holistic or homeopathic options if any, but I would love more help on that if any. I have been researching this condition for the past 10 months and am so lucky to have found this website. I would like more children however I am very concerned about my husband and my odds of carrying this that do not believe we want to risk the chance of having another baby. We have not had DNA testing. I have asked over and over again but have not been successful at a straight answer. I would like solidification that we are indeed carriers before we deny ourselves another child. I also want to determine the exact mutation that exists. Can anyone offer suggestions on my proactive search for answers? I feel as if no doctor or geneticist will discuss this with us as I am not currently pregnant. We have been told that it is an expensive research to merely just want to know. Any advice on genetics, a contact, or other personal stories would help me a great deal. Thanks
On Oct 03 2007, Laura C. Coordinator Wrote:
Hi Tammy,
I have a fourteen year old daughter who has reached her final growth with a height of 4'11". We were not offered any other treatments to help reach her potential height. I can tell you this was dissappointing for all of us. I do not know how much your child is involved with his condition but I think if you have an open line of communication with him and the shots just become not worth the extra height you can cease them. Short statue is a much bigger challenge for my daughter then taking her medicine, her quarterly doctor visits or any hospital visits we have had. You can always stop taking lupron should the negative out weigh the positive.
On Sep 22 2007, Tammy Wrote:
Dear Christine,
Thank you for your response. Any information you are willing to give me would be greatly appreciated. Did your son start growing after you stopped the shots? Do you mean the shots didn't stop puberty? It sounds like you wish you hadn't done the shots? Have you tried any another medicine? Thanks again, sorry for so many questions. I'm as confused as ever. Two endos think its worth a try but I don't want to make things worse !
On Sep 22 2007, Joe CAH Coordinator (RE: to Anon 9/5) Wrote:
From a school's perspective open communication is a positive. Make sure you talk to as many people as possible starting with the principal, office staff, school nurse, and anyone else who will come into contact with your child, arrange for one meeting to talk to them and another to talk to the teacher. Let them know how potentially serious it is but that your child is should be treated normally. Most schools should handle your child very well, if you are in a school that does not, then remind them with e-mail and or visits with the nurse to check up on them, as you build positive relationships most schools will do a great job with CAH and most other disorders.
On Sep 21 2007, Christine Wrote:
Hello Tammy, My son has non-salt wasting CAH. He was diagnosed at 10 w/ bone age of 13. We tried Lupron shots for 1 yr. with no results. His bone age advanced but not his actual height. The shots were painful. The pain usually lasted about 1 day.
On Sep 10 2007, Tammy Wrote:
I have an 11 year old boy with CAH. He has a bone age of 13 and is starting puberty. Our Endo wants us to start Lupron shots to give us more time before growth plates close. After much reading, I find positive and negative outcomes for final height. Do you have any information on this matter to help us make the right decision ? Your message boards are great and let me know we are not alone.
On Sep 06 2007, Jami - CAH Moderator Wrote:
RESPONSE TO 9/5/07 MESSAGE:
Hello! I was having some of the same problems when my son start school - they didn't seem to understand that his disorder, although not physically seen, is a life and death disorder. I began, when he was in 1st grade, to set up meetings with each of his teacher's at the beginning of each school year. I print the synopsis of his disorder and take enough copies for each of his teachers and then I meet with them, as a group, with my son present to explain about his disorder. We talk about what it is, how he deals with it, the meds he takes and what should be done in case of an emergency. I had his ped. endo. write instructions down on a prescription form, which I then laminated and gave to his school to keep in case of emergencies. And finally, to really let them know how important this is, I would follow up with an e-mail in about 1 1/2 - 2 weeks later to see if they had any questions. Open communication is the key to making sure the school is aware of his disorder and to make sure that they are comfortable with what has to be done if he has a crisis.
I hope this helps! Good Luck!
On Sep 05 2007, anonymous Wrote:
Has anyone had any problems with the schools and emergencies? I left the emergency instruction sheet from this website with my son's school, but they don't keep up with anything. When I went in to talk with them about, they couldn't even find it! I guess they don't get it that it is life or death! Please send hints and suggestions! Thanks in advance!
On Aug 16 2007, Cindy (Wright) Bartle Wrote:
Hi Cathy K.,
First, I purchased the book that you wrote about. I bought two, and gave one to our Dr., who had never seen it. Hopefully she will recommend it to other parents, new or old..to CAH. The 2nd copy, I have given to my 15 yr old daughter to keep and read. I will purchase a 3rd copy, for my reading. Thank you so much!
Second, I was wondering if you know if 2008 Conference will include the "girls only" group? Did this group include moms and daughters, or just the girls? I'm hoping our family can attend next year.
Thanks so much, can't wait to see you again! It's been a few years!
On Aug 15 2007, anonymous Wrote:
Hello. I think I am in denial. My son was just recently diagnosed with non-classical C.A.H. His chronological age is 9.5, his bone age is 13. The Pediatric Endo. said bone aging wasn't an exact science. So we did the ACTH stim. test. His levels were above normal. The doctor wants to put him on life long steroids. My son at 7 broke his arm with no incident of shock or anything. At 8 we were in a car accident and again, no shock, stress or anything. I am wondering two things. One is, I read somewhere on the post that sometimes you can treat for stress only...is there anything more I can find out on that. And is there any Holistic or Homeopathic alternatives to Cortisone. We are in the process of changing Ped. Endo. because the one we have is not very compassionate or nice to my child who has a severe phobia toward needles. I forgot to mention we had a MRI done and no tumor was present.
On Aug 03 2007, Jami R. - CAH Moderator Wrote:
Good Day to All! I have been asked to post the following message:
A TV Company based in the UK has approached the foundation to help them find two families with young adults with Primordial Dwarfism that would be willing to particpate in a documentary about the life of a 25 year old with PD. They are particulary interested in people between the ages of 18 and 25. If you are interested please contact the MAGIC office at 1800 3 MAGIC 3 or email sue@magicfoundation.org
Sue Smith RN CDE CNS PNP
Thank You - have a beautiful weekend!
On Aug 02 2007, Cathy K. CAH Consultant, MAGIC Foundation Wrote:
Dear Families,
Convention 2007 was phenomenal! The physicians and their topics were excellent. Networking, giving an injection, and our first "Girls Only" group, wonderful! Save the date: MAGIC Convention July 24-27, 2008
I shared with the group a book that is good reading for CAH. If you would like to order it at your favorite bookstore or online... Congenital Adrenal Hyperplasia--A Parent's Guide
By C.Y. Hsu and Scott A. Rivkees, M.D. ISBN# 1-4208-0649-1
On Jul 30 2007, Laura C. Coordinator Wrote:
Dear NAS and Cindy Bartle,
(NAS) The doctors had the obvious concerns with hypertension that was not controlled over time but all felt that she would gain control as her levels became controlled. I never felt that my daughter was at any immediate risk. If you have concerns MAKE NOTES and bring them to your appointment. Your Dr. is also there to educate you and help you gain a level of expertise. If you are not happy with his bedside manner get another opinion. I went from IL to MA to get a second opinion and then only felt confidante in my decision regarding surgery.
(CINDY) Leveling did not come without frustration and my 14 year old, who self administers her medication, had the same questioning from her Dr. when her levels did not change as he expected. The best advice I received was from a nurse I dearly love. She told me that all bodies are different and no two people respond the same to the same dosages of medication. Just as we all feel pain differently. And it is almost trial and error as to how the body would respond. He adjusted her medication and she did level out but it took a few times to get there.
(NAS) My daughter’s blood pressure was directly correlated to how well her levels were controlled by her medication. As her medication needed to be increased her blood pressure increased. She is on the highest level of florinef that her doctor has had anyone on for an extended period of time. When he increased the florinef she had headaches and elevated bp, but as her body adjusted to the required level her blood pressure normalized. I can also tell you that her weight did affect her blood pressure. She is 5-6 pounds from her target weight and her bp is great. 20 pounds heavier it was elevated.
On Jul 25 2007, Joe CAH Coordinator Re: Cindy Bartle Wrote:
In response to your concerns about your daughters levels. One of the big discussion topics at the convention was the difficulty that many of the adolescent girls were having with their levels. I don't know if this really helps but you are not alone with trying to keep your child's levels managed.
On Jul 24 2007, Cindy Bartle Wrote:
I have a 15 year old daughter with non-salt wasting CAH. When she was an infant, the liquid Cortef did not work for her, she was switched to the pill form and we crushed it and mixed with applesauce. This controlled her perfectly. However, her levels are currently at 4,000 with no explaination as to why. She's taking her meds (Prednisone 5mg 2xdaily) and they are still highly elevated. I'm wondering if her body isn't absorbing, or something...does anyone have any comments or experience with this problem? Her doctor thinks she's not taking her meds; she says she is..and I see her take them for most doses. Dr. has suggested I personally administer and retest in 1 month. Thanks so much.
On Jul 23 2007, NAS Wrote:
To Laura C Coordinator-
Thank you for your post in response to mine concerning my son's hypertention. Did your daughter's endo or pediatrician give you any info on any potential negative effects the high blood pressure could have on such a young child? Anything I might need to be concerned about or ask my son's doctors about?
On Jul 18 2007, Jami C. - CAH Moderator Wrote:
Dear Darra:
Our son was diagnosed at 2 1/2 yrs. with Salt-Wasting CAH...his bone age at 2 1/2 was 12.4 yrs. and he was at Tanner Stage 3 - about 50% thru puberty. He was put on Lupron immediately to inhibit his puberty and hopefully stop his bone age growth.
He is now almost 15 yrs. old and his bone age is around 19/20 yrs old! He had Lupron shots until he was 11 yrs old (monthly shot) at which time we let him finish going thru puberty.
His original height was predicted at 4'9" - he is now 5'9", which is his final height...a whole foot more!!!
It was very hard to see him get his monthly shot of Lupron, on top of all of his other pokes - but it was so worth it!!!
I'm not sure if I helped you or not - I hope that by sharing my son's experience, you are able to ask the right questions and have a minimal of peace of mind.
Welcome to MAGIC and the Message Board! If you would like to speak with me, please contact Jamie Harvey or Cathy for my contact information.
Good Luck!!!
On Jul 17 2007, Darra Wrote:
Hi everyone
We are new to MAGIC, we live in Boise, Idaho. I have a 7 yr old son with salt wasting CAH. We have gone through 2 endocrinologists both with differing opinions. Now the one we have (in Utah) seems to be on the same page as us. Our biggest issue is bone age. At 6 1/2 my son's bone age was 9. This new endo is planning to be much more aggressive than the last (I'm happy about this) anyone had similar experience or had a child take the andristine-dione inhibitor? (I think that's what he said) thanks.
On Jul 16 2007, (Re: to Art ) Joe CAH Coordinator Wrote:
I just want you to realize how much it means to all of us parents of children with CAH to hear encouraging words from an adult who is leading a normal life. I think for many of us, our children's "normal future" is one of our major concerns. When our son was just diagnosed my wife took him to his 2nd appointment with our endo, while they waited his RN brought into their room another mother and a young boy maybe 12-14 years old, after the tears, my wife was encouraged that we could handle everything. It is little things like this that can make a HUGE difference, so I guess this became a long winded thank you!
On Jul 16 2007, Ulrike G. Wrote:
Hi Everyone,
we came to MAGIC 15 years ago, my daughter, then 4 years old, was diagnosed very late, only when she showed pubertal signs. Now she is a happy 20 year old lady, and due to the wealth of information we received from the MAGIC foundation, we managed all her "problems" well and she is doing very well. I felt the newsletter all those years a valuable resource.
Thank you, MAGIC
On Jul 13 2007, Art Wrote:
Dear Folks;
I am 52 and have CAH. I just wanted to reassure everyone with children newly diagnosed that if you make sure that you keep up with the medication they should be able to have a very normal life. I have had very few problems and I was at the leading edge of treatment. Just make sure that I they get sick to make sure you contact the Doctor so that their medication can be steped up if need be. Secondly if they need a medical procedure make sure they know that the child is steriod dependent. Other than that don't worry the current treatments work very well.
On Jul 13 2007, Ingrid Wrote:
I just thought I would mention that NIH (National Institutes of Health), in Bethesda, MD (just outside Washington, DC) is doing a Natural History Study on CAH (classic and non-classic). They are interested in parents and/or children with either form of CAH, and I think they will pay for transportation and housing if you don't live in the area.
We do live in the area and I participated last year. After many different tests (all free), I found out that my case of LOCAH is mild enough that I only need stress dosing, and don't need to take daily steroids. This is after I've been taking 7.5 mg/day of Prednisone for some 20 years and now have ostepenia. I was slowly weaned off of Prednisone last fall, and although at first I felt tired, now feel just fine.
Genetic testing discovered a "new" mutation for LOCAH on me, which was very interesting. Ever since I was pregnant with my 1st child, in 1997, I knew one of the mutations I have is the V281L mutation (common in people of Ashkenazi descent - my dad's side of the family), but no other commonly known mutations showed up. NIH did further gene sequencing and found another mutation, R426P, which had not been known previously to cause LOCAH. Hmm maybe they should "name" the mutation after me, ha! This would have come from my mother, who is Danish. The Scandinavian population is not known to have high rates of CAH so this was a bit surprising. My son carries the V281L mutation and my daughter carriers the R246P mutation, we learned. My brother, who also has LOCAH, is now considering participation in the study if the out-of-state logistics can be worked out.
On Jul 13 2007, Jami C. - CAH Moderator Wrote:
This is in response to Jan J.:
Hi Jan! We travel all the time with our son, including with all of his medicines. We have a small 6-pack cooler that we have an ice pack and we put his cortef, florinef and his injectible with two needles. When it's time for us to go through security at the airports, we let them know immediately that we have medicine, an ice pack and needles and ask that they do a manual search. Sometimes they groan about it, but they always do it. I also have a prescription written by his endo with all of his meds, strengths and what they are for that I have laminated and I put that right in the cooler too. We have NEVER had any problems with our trips and we travel state-side and international! Hope this helps - Good Luck!
On Jul 13 2007, Patricia, CAH Coordinator Wrote:
Hello,
Welcome the the CAH message board. I have 4 boys 3 unaffected. My 17 year old has late onset CAH which was diagnosed when he was 7 and going through growth hormone therapy. Doctors discovered his bone growth advancing to fast and that's when he was diagnosed with CAH. He is non-salt wasting. I hope we can help in any way.
On Jul 12 2007, Laura C, CAH Coordinator Wrote:
Hello Everyone, I am so happy to be a part of the Magic Message Board. I have been involved with the Magic Foundation for 14 years. My 14 year old daughter is a salt waster and was diagnosed at birth via state screening. She is like every other 14 year old girl. She wears a bracelet and when asked what its for just says "I take medicine," and leaves it at that. We have had great doctors and great support from Magic. Cathy Kusch is a wealth of information and led me in the right direction when I needed it. I hope I can give a little back of what Magic has given us!
On Jul 12 2007, GMurphyEsq@Hotmail.com Wrote:
My wife and I are the parents of a 6 year old son with CAH-21-hydroxylase deficiency. He alomost died at birth because of the failure to diagnose. Our state (WV) just passed legislation this year to add CAH to birth screening. My wife was one of several individuals and groups to lobby our legislature. Magic Foundation has been a great source of information. I also suggest Cares Foundation (www.CaresFoundation.org). The more information you have, the better off you are. I'm glad to see the advent of this message board.
On Jul 11 2007, Jami - CAH Moderator Wrote:
Hello Everyone! How exciting that our CAH Message Board is up and running! I have been waiting for this wonderful opportunity!
My name is Jami - CAH Moderator and I have 6 children; 5 non-affected children and 1 child (14 yrs - almost 15) who has the CAH - Salt Wasting disorder.
Our son wasn't diagnosed until he was 2 1/2 yrs. old during which time he had numerous crisis' that went undiagnosed until he started showing pubertal changes.
Today, he is a happy (as much as teenagers are), well-adjusted teen who looks at his disorder as an every-day kind of thing that he just happens to have to take medicine for.
We came to Magic 3 years ago and the wealth of information and empathy that our family received was phenomenal! It was definetly one of the smartest moves we made as we reached out to other affected families with rare disorders.
Welcome to Magic and our CAH Message Board! I hope each person who follows receives the answers each of us are constantly searching for when our child(ren) are diagnosed with a rare disorder.
On Jul 11 2007, Joe CAH Coordinator Wrote:
Hello Everyone,
Welcome to the CAH message Board. I hope this gives us all a place to come for the day-to-day concerns we have, and what a better resource than everyone who deals with CAH everyday! A little introduction about our family, we have a 12 year old unaffected daughter and a 7 year old salt-wasting son. He was diagnosed through newborn screening and has been a MAGIC member almost from the beginning. We feel that the MAGIC foundation has been an integral part of our life over the past seven years and that this board will only add to its benefits. We look forward to hearing from everyone!
On Jul 10 2007, Jamie H, The MAGIC Foundation Wrote:
Welcome Everybody!
If you "scan" around at the other message boards which have been up a little longer- you will see that it helps to keep track of messages if you put a person's name (if they list one) or topic to help keep track of all the conversations.
For example: RE: Cathy Kusch
Spell check! ;-)
She and I are testing your board and having fun!
Enjoy and remember- only appropriate posts will be authorized to the website. Spam or inappropriate content will be deleted. Feel free to post as your email is never disclosed. If you want to contact someone- leave a message for Jamie (as explained in the Introduction) and post a message to that person to contact Jamie directly so that they two of you can be hooked up. Enjoy!
On Jul 10 2007, Cathy Kusch Division Consultant Wrote:
Dear Families,
Welcome to the CAH message board. Comments posted here are family concerns mot medical advice. Please contact you doctor for any medical advice you may need.
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