Insurance Issues

find us on facebook follow us on twitter


Home » Foundation Information » Support Services » Message Boards

Welcome to MAGIC Message Boards

MAGIC families communicate with each other on Facebook and Yahoo Communities (Listserv's) .


Enjoy Great communnication!Some FB groups are new and others are more established. Feel free to join our FB communities and chat with other parents and/or affected adults!

Join MAGIC's official Foundation Facebook page

 

 If you are not familiar with these types of groups, skip down beneath this row of boxes for explanations.

 

 

OTHER 

We have a MAGIC Foundation FB Cause page for general news and discussions (linked above). However, we have also have specific FB pages outlined below. Some groups are for parents, some are for kids, others are for affected adults and we even offer a siblings group. Choose the one(s) which fit you best! Enjoy!

NOTE: Some of these groups are in their infancy- so please don't be discouraged- sign up to build these areas strong!

Condition specific FB pages for Parents

Insulin-like Growth Factor Deficiency (IGFD)

Parents of Growth Hormone Deficient Kids

Parents of CAH children (Congenital Adrenal Hyperplasia)

Parents of Panhypopituitary Children

Parents of Small for Gestational Age Children

Parents of Children with Precocious Puberty

Parents of CAH children

Parents of Children with Idiopathic Short Stature

Parents of Children with Optic Nerve Hypoplasia (ONH)/(SOD) Septo Optic Dysplasia

Parents of Children with (Congenital or Acquired) Hypothyroidism

Parents of Children with Turner Syndrome

Parents of RSS Children

Life with McCune-Albright Syndrome or Fibrous Dysplasia

Parents of Kids with Hypopituitarism

 

FACEBOOK Groups for Kids

MAGIC Brothers and Sisters

MAGIC Kids (no parents) must be 13+ years old

Groups for Affected Adults

RSS for Adults
for grown children and adults (sorry-not for parents of affected kids!)

Cushing Syndrome (Cushings) Chat

Adult Growth Hormone Deficiency & Adult Panhypopituitarism

 

 

Congenital Adrenal Hyperplasia

Click to join MAGIC-CAH


Growth Hormone Deficiency in Children

Click to join MAGIC_list

Idiopathic Short Stature

Click to join ISSparents


Insulin-like Growth Factor Deficiency (IGFD or IGF-1 Deficiency)

Join insulin-like_growth_factor


McCune-Albright Syndrome
and Fibrous Dysplasia

Click to join MASandFDchat


Optic Nerve Hypoplasia
Septo Optic Dysplasia
DeMorsiers Syndrome

Click to join MAGIC-SOD-ONH


Panhypopituitarism / both
Congenital & Acquired Pan /
and Tumors impacting Pituitary Function

Click to join panhypopituitarism

Russell-Silver Syndrome Kids Click to join RSS-Support

RSS Adults Click to join RSSadults


Small for Gestational Age
Click to join SGAChat


Thyroid Conditions
Congenital and Acquired

Click to join congenitalhypothyroidism


Turner Syndrome
Click to join TurnerSyndromeChat

 

INSURANCE

 Insurance Issues and Financial Assistance for medicine Articles
  Introduction (available for public)

Insurance Issues HELP Message Board
  (this is members only area)
Log into the members section and look on the left side for the link to this Board.

ABOUT YAHOO GROUPS

What is a Listserv?
A listserv is basically an electronic "village" where lots of people with similar concerns and questions have conversations (bulletin board style). 

Who are the members of the Listservs? There are no medical professionals as moderators, therefore no professional medical advice is given. Instead you will see parents comparing stories and advice. It is a communication tool for honest and open discussion by affected families and adults.

How do I get started?
Get a (free) Yahoo Email Account if you do not already have one. (yahoo.com)
The screens will guide you on what to do. Then, choose (in your Yahoo preferences) if you want listserve messages to come to your email (not recommended), or if you would rather visit the Yahoo group website to read messages (best method!). 

Once you have your Yahoo account set up the way you want it- come back to this page and click the Yahoo Box below which is to the group you are interested in joining and follow the instructions.

When will I be able to get in the Listserv? The Yahoo Group's are "screened" by MAGIC parent volunteers to keep "junk" and spammers out. This means that you must apply to the group(s) to join. So please make sure to write in the comments section of the "apply" (something that shows you are a parent etc. and not a spammer) or your access will take longer as they will have to email back and forth to you to screen those applying! It takes a little extra effort but it protects everyone. So be prepared to wait a day before you hear back. It is parent volunteers who spend time to ensure that everyone is protected.

If you have applied for membership to a listserv and do not get a response (volunteers work hard but sometimes get busy), please ContactUs@magicfoundation.org to let us know. We will make sure your application actually reached the moderators and troubleshoot the delay for you.



Printable Version | Email this Page | Larger font

This page was last updated on Wed Jan 11, 2012.

 
    © 2012        The MAGIC Foundation     6645 W. North Avenue     Oak Park, IL 60302     1.800.362.4423 / (1.800.3 MAGIC 3) / 708.383.0808 Site Disclaimer