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Each "main" group of conditions within MAGIC has a leader called a Division Consultant. Each Consultant has a child with that specific condition (or is an affected adult) and is available to speak to you from personal experience.
Remember: "we" are not medical experts. However, we can help you understand troublesome medical "stuff" in a way that is easier to grasp. We can also tell you how we dealt with situations similar to what you are going through, and how things turned out for os and our children.
These great Division Consultants spend countless hours answering emails, talking on the phone and assisting the families. Together they form the Division Consultant Committee. (Scroll down for additional support areas.)
Division Consultants -to email a consultant
Email Address: ContactUs@magicfoundation.org and put their name in the Subject line.
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Currently led by Founders of MAGIC. Mary Andrews, Jamie Harvey and Teresa Tucker.
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L-R: Linda Derricott and Sharla Adrian
Congenital Adrenal Hyperplasia
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Denise de Reyna
Central Precocious Puberty
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Growth Hormone Deficiency-Child.
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Jamie Sorenson
Insulin-like Growth Factor Deficiency
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Sandy Jones
Growth Hormone Def.- Adults
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Kc Sheehan
McCune-Albright Syndrome/Fibrous Dysplasia
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Panhypopituitarism/ Tumors
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Dayna Carney
Russell-Silver Syndrome
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Bree Bamonti
Optic Nerve Hypoplasia/
Septo Optic Dysplasia
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Gretta DeSantis
Turner Syndrome
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Stacy
Cushing Syndrome for Adults
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Shannon Barrett
Small for Gestational Age
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Network Coordinators- what is a Network? click here
In addition to the amazing Division Consultant Committee, we have great volunteers (network coordinators) who focus on a specific area of need for families. They include:
Lola Fortier, Chronic Renal Insufficiency
Linda Blevins, Down Syndrome as it relates to growth problems
Clair S, Disorders of Sexual Development
Sharon McHugh, Graves Disease
Blythe Clifford, Thyroid Disorders
Tracey Porrecca, Hypophosphatasia
Erica Rieger, Jeunes Syndrome
Sandi Bradshaw, Sheehan's Syndrome
Rani Elway, Schwartz-Jampel Syndrome
Beth Hultquist, Sensory Integration Disorder/Failure to Thrive
Michelle Scognamio- Arnold-Chiari Malformation
MacKenzie Kimball- Adult RSS Coordinator
Special Interest Group Coordinators:
We also have parents who volunteer to non-disorder specific areas which they have a special knowledge of. They include:
Jodi Zwain, School Accomodations
Yvetter Getch, School Accomodations
Beth Hultquist, Sensory Integration Disorder/ Failure to Thrive
Andrea K., Insurance Message Board
As parents of affected children we all benefit from the great work of all these tremendous people. Feel free to contact them for questions or just to tell them thanks! They can be reached via the Contact Us link on the left. Simply put their name in the subject line and we will make sure they get it!
As a parent of an affected child, or affected adult, .if you would like to volunteer your time to answer phone calls regarding a rare disorder or other special talent, please call our office and ask to speak with Dianne. She can be reached at (800) 3 MAGIC 3. Thanks!
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