|
Each "main" group of conditions within MAGIC has a leader called a Division Consultant. Each Consultant has a child with that specific condition (or is an affected adult) and is available to speak to you from personal experience.
Remember: "we" are not medical experts. However, we can help you understand troublesome medical "stuff" in a way that is easier to grasp. We can also tell you how we dealt with situations similar to what you are going through, and how things turned out for os and our children. These great Division Consultants spend countless hours answering emails, talking on the phone and assisting the families. Together they form the Division Consultant Committee. (Scroll down for additional support areas.)
Division Consultants -to email a consultant
Email Address: ContactUs@magicfoundation.org and put their name in the Subject line.
|

|

|
Currently led by Founders of MAGIC. Mary Andrews, Jamie Harvey and Teresa Tucker.
|
|
L-R: Linda Derricott and Sharla Adrian Congenital Adrenal Hyperplasia
|
Denise de Reyna Central Precocious Puberty
|
Growth Hormone Deficiency-Child.
|
|

|

|
|
|
Jamie Sorenson Insulin-like Growth Factor Deficiency
|
Sandy Jones Growth Hormone Def.- Adults
|
Kc Sheehan McCune-Albright Syndrome/Fibrous Dysplasia
|
|

|

|

|
|
Panhypopituitarism/ Tumors
|
Dayna Carney Russell-Silver Syndrome
|
Bree Bamonti Optic Nerve Hypoplasia/ Septo Optic Dysplasia
|
|

|
|

|
|
Gretta DeSantis Turner Syndrome
|
Stacy Cushing Syndrome for Adults
|
Shannon Barrett Small for Gestational Age
|
Network Coordinators- what is a Network? click here
In addition to the amazing Division Consultant Committee, we have great volunteers (network coordinators) who focus on a specific area of need for families. They include:
Lola Fortier, Chronic Renal Insufficiency Linda Blevins, Down Syndrome as it relates to growth problems Clair S, Disorders of Sexual Development Sharon McHugh, Graves Disease Blythe Clifford, Thyroid Disorders Tracey Porrecca, Hypophosphatasia Erica Rieger, Jeunes Syndrome Sandi Bradshaw, Sheehan's Syndrome Rani Elway, Schwartz-Jampel Syndrome Beth Hultquist, Sensory Integration Disorder/Failure to Thrive Michelle Scognamio- Arnold-Chiari Malformation MacKenzie Kimball- Adult RSS Coordinator
Special Interest Group Coordinators:
We also have parents who volunteer to non-disorder specific areas which they have a special knowledge of. They include: Jodi Zwain, School Accomodations Yvetter Getch, School Accomodations Beth Hultquist, Sensory Integration Disorder/ Failure to Thrive Andrea K., Insurance Message Board
As parents of affected children we all benefit from the great work of all these tremendous people. Feel free to contact them for questions or just to tell them thanks! They can be reached via the Contact Us link on the left. Simply put their name in the subject line and we will make sure they get it!
As a parent of an affected child, or affected adult, .if you would like to volunteer your time to answer phone calls regarding a rare disorder or other special talent, please call our office and ask to speak with Dianne. She can be reached at (800) 3 MAGIC 3. Thanks!
|