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What is a Network?
A Network is a smaller population of people within the Foundation, who all share the same, or very similar medical condition.
Each Network is headed by a parent with a child affected by that Disorder. These parents are volunteers who want to speak with other parents and share their “learned” wisdom about life with that disorder.
What if my child/I have more than one condition?
This is a common fact among our families. It may be that we have other families who have the same or very similar “set” of diagnosis. Through our Parent 2 Parent Networking system, members will be matched as closely as possible. If the diagnosis crosses over 2 Divisions, it may be helpful to contact both Division Directors and monitor all aspects of medical information and services offered by both Divisions.
What do I do if my child’s disorder is not listed in the Network of Division Sections?
There is one final area of families within MAGIC. It is called the Rare Disorders section. Here there may be only 2 or 3 families listed with that Disorder. These are very rare conditions and the families TRULY want to speak with other families like themselves. If you find your diagnosis on this list, we really want to encourage you to network with these families. Like you, they have found it difficult to find another “like” family and to share experiences and information is very important for the entire family.
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