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Support Services

Welcome to The MAGIC Foundation !  

No Membership Required Services Include:

Specialty Divisions -  All disorders supported by MAGIC are officially classified as "rare" by the medical community. Despite this fact we assist thousands of families each year. We separate larger groups of families (determined by the diagnosis) into what we call - Divisions. This helps us stay organized while still providing very personal help to families contacting us.  If your child's disorder was not listed on the home page as a division, it does NOT mean that we cannot help you.  Please visit the Rare Disorders section. Here you will find an extended list of additional conditions networked among our members.

Each division is headed by a Division Consultant or Network Coordinator. These wonderful parents of affected children, or personally affected adults respond to phone calls, emails and all communications where people want to speak to someone with real experience. (click here to view more information)

Special Interest Groups- MAGIC has parent volunteers who specialize in some key areas. They include: School Accomodations, Listserves and other areas of great help to families. Call us to contact these volunteers.

Network Coordinators- Smaller groups of families are coordinated by a group of amazing volunteers we call Network coordinators. They include disorders such as: Genital and Reproductive Anomalies in Children, Hypophosphatasia, Graves Disease and Adult Thyroid Disorders, Chronic Renal Insufficiency, Sheehan's Syndrome, Jeunes Syndrome, Schwartz-Jampel Syndrome, Down Syndrome as it relates to physical growth, Sensory Integration Disorders and Failure to Thrive. Call us for information on contacting these coordinators.

Networking - MAGIC maintains the world's largest database of affected adults and families whose children are affected by growth disorders. This allows us the ability to connect families and affected persons to those with matching or very similar medical conditions. We have disorder/condition specific communication groups on both Yahoo and Facebook.

Educational Support - MAGIC offers a wide array of Educational programs. Some are geared for parent education,  while others are more in line for professionals such as school health officials.  We also offer the world's largest educational convention annually for families of affected children as well as an adult pituitary disorders convention. Criteria apply to these programs, please click on the titles to see the specific information.

Informational Services - MAGIC produces educational brochures [the online version are identical in content to those manually printed] explaining in lay terms, various medical disorders affecting children's growth. The brochures are listed within each Division and in the Rare Disorders section of this site as available.

Parent Help Line - MAGIC offers a toll free help line to offer support, physician referrals, support and guidance.

Website - We try to offer as much information as we can through this site. If you have a comment or suggestion as to how we can improve this site, please let us know. Email our webmaster at jamie@magicfoundation.org.

 

Our Members Only Services also Include:

Friday Emails- Each week an email with medical updates is sent to members.

Newsletters - MAGIC publishes quarterly newsletters for members, available in hard copy and online. 

The MAGIC Touch - has sections for each of our primary divisions. Content includes, personal stories, medical updates and articles, foundation information, recognitions for donors, graduations etc., and more.

The MAGIC Star - is written for adult affected growth hormone deficient patients and includes information regarding medical updates, personal stories and foundation information.

Scholarship Programs - We have a great group of very supportive parents and sponsors. Through their generosity, we are able to offer a limited number of higher education scholarships for qualified members and affected young adults.

Resource Bank - MAGIC keeps an Additional Resources database for parents and professionals which includes (among many other things) references to other support organizations.

Complete Website Access- we offer more Members Only features such as:

Personal stories are tightly restricted and protected on our website via passwords and identity verifications. Here Members share information about their personal or their child's medical conditions. Our members offer their personal stories so that we may all learn helpful ways to manage the unique issues associated with these conditions. If you have a personal story to share, please let us know! You don't have to be a great writer! Parents simply want to learn from your experiences and heart! So please send in your story to jamie@magicfoundation.org. Thank you!

Photo Albums- We have photo albums of children, MAGIC events such as walk-a-thons and educational convention field trips, presentations and much more. Families provide pictures of their children so that other kids can remember their friends, or see the photo of a penpal. These albums are for members only.

Clinical Studies and Trials listings and links- Searchable areas are by medical condition as well as geographic regions.

Medical Articles- We link to articles on the web which parents recommend to us for disorder information. This saves many people time in researching "good" information throughout the entire Internet.

The above listed descriptions are only summaries of some of the support services we offer. Please call us if you need assistance and we will try to point you in the best direction.

Contact us:
Parents Toll Free Phone Number: (800) 3MAGIC3
Outside the U.S. call: (708) 383-0808
Professional Line: (708) 383-0808



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This page was last updated on Thu Jan 12, 2012.

 
    © 2012        The MAGIC Foundation     6645 W. North Avenue     Oak Park, IL 60302     1.800.362.4423 / (1.800.3 MAGIC 3) / 708.383.0808 Site Disclaimer