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Searching for help? There are many studies and trials which may be of interest to you.
The best site we have found for searching studies from around the country is provided by the National Institutes of Health. Check it out-click here!
Also The MAGIC Foundation has joined forces with Center Watch for Clinical Trial information from around the globe- click here to access this area.
Congenital Adrenal Hyperplasia
Study at UNC click here
New Cushing Syndrome study! Click to see details!
Growth Hormone Deficiency- children
Is your child making enough growth hormone but still not growing well? click here
McCune-Albright Syndrome -Tel: 1-800-236-9933 Call Center for this study
Noonan Syndrome - Does you child have NS and is not growing well? click here
Precocious Puberty
A. NEW "Abbott Laboratories is conducting a clinical trial with leuprolide acetate in children with central precocious puberty. To learn more about this trial and where it is being conducted, go to ClinicalTrials.gov and enter CPP NCT00635817 in the Search for Clinical Trials field. Contact Abbott Global Medical Services (800-633-9110) for information on how to reach the study investigator in your area."
B.(non-MAS) Fibrous Dysplasia Ongoing Trial click here
C. Testotoxicosis Study click here
Septo Optic Dysplasia survey of SOD and ONH families may remain anonymous click here
Turner Syndrome
A. Introducing- A growing international database of individuals with Turner syndrome who are willing to participate in scientific surveys and clinical studies. The primary purpose of this new state-of-the art forum for data entry, data collection, and web-based communication is to accelerate research dedicated to understanding Turner syndrome and the problems associated with it. Anyone with TS can enroll by going to www.tsregistry.org.
B. Turner Syndrome -Prenatal Diagnosis click here
NEW Study Recruiting- It is a study investigating the use of low dose estrogen at an earlier than standard age (11.5 – 13 years) compared to the more standard 14 – 15 years of age. It is a randomized multicenter trial which has three treatment arms: one group will receive a very low estrogen patch while on growth hormone, the second group will receive a low dose estrogen patch on growth hormone, and the third group will continue growth hormone as is, without estrogen. We are interested in determining whether very low dose or low dose estrogen improves height or at least achieves the same height compared to delaying estrogen treatment. A preliminary study suggests that starting low dose estrogen earlier achieves the same height if not better, with the added advantage of starting puberty earlier. Although the principal site is at the
University of
Chicago, it is a multi-center trial with participating hospitals in other cities.
7. Women with Pituitary Problems WANTED for a Testosterone Study- for details see document listed in table on the left of this page Click here for additional studies by Dr. Friedman.
8. Clinical Studies and Trials Searchable Database
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